Thursday, 21 July 2022

Campaign reply - Please back campaign to improve endometriosis care - sign EDM on NICE Guideline

Thank you for contacting my office. I very much appreciate you getting in touch about endometriosis and polycystic ovary syndrome (PCOS). 

As Co-Chair of the All-Party Parliamentary Group on Women’s Health, this is a topic I care deeply about.

These are common long-term conditions that can have a significant impact on a woman’s life. I am aware of and sympathise with the hardships faced by women who experience symptoms. I believe it is important to raise awareness of the impact on women not just here in the UK, but also worldwide.

 

To provide support, all obstetricians and gynaecologists have been trained in the diagnosis and treatment of these conditions and clinical guidelines on the diagnosis and management of endometriosis, and PCOS, have been published to assist doctors. I firmly believe these guidelines must be followed in clinical settings and education, and in primary care, so women know what to expect and doctors have the knowledge they need to support women. 

 

I note your desire to see the NICE guideline on endometriosis updated and I understand that guidelines were amended in late 2021 recommending that women with endometriosis outside the pelvic cavity should be referred to a specialist endometriosis centre. A further review of NICE guidelines is expected in 2022/23 to consider whether they should be updated.

 

I agree with ministers that it is unacceptable that the average diagnosis time for endometriosis is seven to eight years. It is imperative that we have a greater focus on women’s health to address issues like this and I warmly welcome the publication of the Government's Vision for Women's Health to tackle decades of health inequality. I was especially encouraged to see that gynaecological conditions, like endometriosis and PCOS, are a priority area in the Vision. 

The ambition is that every woman and girl will be able to access the right information, support and diagnosis for menstrual health and gynaecological conditions and ways to improve awareness of and care for those suffering symptoms of these conditions.

More detail about the Government’s commitment to endometriosis care can be found in the new Women’s Health Strategy:

https://www.gov.uk/government/publications/womens-health-strategy-for-england/womens-health-strategy-for-england

Once again, thank you for taking the time to write. If you require any further assistance, then please do not hesitate to get in touch. 

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